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Blog Entry# 2149110
Posted: Feb 02 2017 (16:24)
1 Responses
Last Response: Feb 02 2017 (20:23)
1 Responses
Last Response: Feb 02 2017 (20:23)
My Dear IRI Members,
I know that this is not related to the rail fanning stuff but is an message I want to convey. There is a drug called 'Spinraza' which is recently approved by FDA in USA. But it's not currently available in India. Also this drug costs around $375000 per annum which is an impossible task for a middle class family to arrange this medicine for their son/daughter. Therefore, in order to draw the attention of the Government of India to bring this drug to India at an affordable cost. I want all the members of IRI to sign this petition :-click here and give their best shot by changing the lives of the persons suffering from Spinal Muscular Atrophy....
more...
I know that this is not related to the rail fanning stuff but is an message I want to convey. There is a drug called 'Spinraza' which is recently approved by FDA in USA. But it's not currently available in India. Also this drug costs around $375000 per annum which is an impossible task for a middle class family to arrange this medicine for their son/daughter. Therefore, in order to draw the attention of the Government of India to bring this drug to India at an affordable cost. I want all the members of IRI to sign this petition :-click here and give their best shot by changing the lives of the persons suffering from Spinal Muscular Atrophy....
more...
Thanks a lot for your responses !!! keep going on..........:) #IRIisgreat